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Family Care

Family Programs_Family Care_Casey Family

"Thank you so so much for the beautiful card received right on time!!  As you know it is so lovely for our angels to be remembered by others. Thanks to all at Hunter's Hope - you are all amazing and we are privileged to be part of this wonderful family."

~ Nadia, Tom, Ben and Leo
- Angel Mac Casey's Family
- New Zealand

Welcome to Hunter’s Hope Family Programs!

Hunter’s Hope Foundation is fully committed to providing encouragement, education and support to our families. Our hope and prayer is that you will feel connected to our family and will join us in this fight against these devastating diseases.

Among the essential goals of the Foundation, founders Jim and Jill Kelly, seek to inspire an appreciation of all children and express a thankful heart towards God for the precious gift of life.

In striving to achieve our mission, our Family Programs encompasses key program areas designed to meet the needs of our families.

Family Programs_Hope For Life_Graphic Hope for Life

Everyday, children affected by Krabbe and other leukodystrophies are defying the expectations placed on them. Read stories of hope and find helpful resources as you care for and enjoy time with your child.

Visit the Hope for Life page to learn more...

Family Programs_Registration_Graphic Family Registration

Become a member of our Hunter's Hope Family by registering on the Affected Family Registration page. Together, we will win the battle against these devastating diseases.

Visit the Affected Family Registration page to join the Hunter's Hope Family...

Family Programs_Equip Exchange_Graphic Equipment & Supply Exchange

Visit the Equipment & Supply Exchange page to learn more about this family program...


Family Programs_Symposium_Graphic Family & Medical Symposium

This annual Symposium is held each year for families to come together, reconnect with old friends and make new friends. Our goal is to provide our families with a fun, relaxing and fulfilling time, while learning from medical experts about the advances of these devastating diseases.

Visit the Family & Medical Symposium page to learn more about this family program...

Family Programs_Hunter's Wish Gift John D'Amico_Graphic Hunter's Wish Gift

Our Hunter's Wish Gift Program helps families  facing extreme financial stress attributed to the costs associated with caring for a child with Krabbe and other Leukodystrophies.  Requests are granted on a case-by-case basis and are limited to meeting needs that will enable an affected family to provide the best possible care for their child.

Visit the Hunter's Wish Gift page to learn more about this family program...

Hunters Home Hunter's Home

Located on the Duke University Campus and just minutes from Duke University Hospital, our Hunter's Home provides families receving treatment at Duke a fully furnished 'home away from home.'

Visit the Hunter's Home page to learn more about this family program...

What Our Families Have to Say...

“Thank You to all of you for your kind gift. The van has already been a blessing to our family. Words can not express how it feels to have the van and to know that we have not had to make any financial changes. Thank you, thank you!!!”
~ Dianna Greene, mom to Dalton (Krabbe Disease, Transplant) 

"The day we received our welcome package Peyton had only been home post transplant for MLD for 2 days. The smile on his face said it all. The bear goes everywhere with us. Peyton simply named him...Hunter! The book Without a Word was amazing - every emotion is in this book. I can't believe on top of everything that Hunter's Hope does, they also make it a point of making sure you feel welcome and part of something great."
~ Jessica White, mom to Peyton (MLD Transplant)


Additional Information for Families

Related Donor Cord Blood - This Program offers families the opportunity to have the umbilical cord blood of a new baby collected and stored at no cost to them. The cord blood then may be used to treat an affected biological sibling or parent who has a diagnosed disease, which can include Krabbe and other leukodystrophies, leukemia, lymphoma, a sickle-cell disorder, an immune deficiency or a metabolic disease. The program is administered by the National Marrow Donor Program (NMDP), and overseen by the U.S. Health Resources and Services Administration (HRSA). More information can be found on the National Marrow Related Donor Cord Blood Program website.

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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Ralph C. Wilson Jr. Wish Gift


Get Involved

The Kelly Tough
Every Score
Dine Out for Hope
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200