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Family Symposium

Save the Date!
July 17th – 23rd  2017
20th Annual Family & Medical Symposium 

Holiday Valley Resort in Ellicottville, NY  

The Hunter's Hope annual Family & Medical Symposium brings together the world's leading Leukodystrophy experts with families affected by these diseases for a week of learning, sharing and fun.

Two words to accurately sum up the Hunter’s Hope Family Symposium are FREEDOM and HOPE. The Symposium affords our families five days of freedom! Freedom to laugh, freedom to cry, freedom to ask any questions of others in similar circumstances, freedom to use their child’s suction machine, freedom to leave a meeting room and to come back – all without awkward stares or hurtful questions… FREEDOM!

The Symposium also offers HOPE! Families leave this week with a renewed hope from medical experts who relay knowledge of advancements in medical care, treatments, and research. They also receive hope by gaining insight from other families.  

For families with a child affected by a Leukodystrophy, many simple, every day experiences can seem almost impossible. When families do venture out, it can be difficult because of the amount of medical equipment necessary just to keep their child breathing and comfortable. The Symposium is a place where everyone understands and life-long friendships can be formed with other families on a similar path. There is no judgment, only love. 

For families in attendance, meals and accommodations are paid for by Hunter's Hope. Travel arrangements to and from the event are the responsibility of the family but travel assistance is available for qualified families unable to cover these expenses. 

For more information on or questions regarding the Family & Medical Symposium, please contact our Family Programs Director, Kathleen Scott. 

Click here for the 2017 Family Symposium Agenda


2016 Symposium_Elmer at Walk

2017 Symposium Walk! 

Fundraise or donate in honor of a loved one.

Each year at the Symposium we have a walk for families in attendance. This is a special time to honor our heroes - children affected by Leukodystrophies.  

If you're not attending, you can still start a team and fundraise in honor a loved one. Or, you can support one of our families' teams.

Your support will continue to make this life-changing week possible for our families.

 Click Here to get started!


What Our Families Have to Say...  

"We absolutely LOVE being with our Leukodystrophy family! When Hailey is here, she is home. Everyone welcomes her hugs and kisses. I can talk to them about anything and there is no judgment, just support, understanding, and love. Through everything that everyone is going through we find laughter together and it's amazing." 

~ Jessica Gaston - Mom to Hailey (Unspecified Leukodystrophy), Las Vegas, Nevada 

"It is unbelievable how refreshed I feel every year after leaving ‪the Hunter's Hope Symposium‬‬. It's a feeling I can't even explain, a family I am blessed to be part of. Every year the old relationships get stronger and new relationships are made. When we leave I feel like I'm leaving a bunch of brothers and sisters for a year; it is so tough. I cannot thank every person in this family enough for the welcoming and support they provide to Tenley and the rest of our family. 380 days until we meet again, but whose counting!!"

~Emily Thompson - Mom to Tenley (Krabbe Disease), Spicer, Minnesota

Thank You to our Strategic Partners!

The Annual Family and Medical Symposium would not be possible without the generous contributions various organization including:

NFL Foundation Logo
The NFL Foundation provides funding to support various Family Care programs, including our annual Family and Medical Symposium.

Kelly for Kids Logo
The Kelly for Kids Foundation provides funding to support various Family Care programs, including our annual Family and Medical Symposium.


Sponsor a Family

The average cost for a family of four to attend the Symposium is $5,000.
Please consider giving to help a family attend the Symposium this year.  Any amount is greatly appreciated.
With your help, we can continue to make it possible for no family to ever be turned away from attending.

Past Year's Programs









Past Year's Videos




2009 Interview

 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Ralph C. Wilson Jr. Wish Gift


Get Involved

The Kelly Tough
Every Score
Dine Out for Hope
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200