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2016 Symposium_Kurtzberg and Waldman


2016 Symposium_Wenger and Wrabetz

2016 Medical Symposium
Top: Dr. Joanne Kurtzberg (Duke Children's Hospital) and Dr. Amy Waldman (Children's Hosptial of Philadelphia with Hunter's Hope Co-Founder Jill Kelly and Hunter's Hope CEO, Jacque Waggoner
Bottom: Dr. David Wenger (Thomas Jefferson University) with Dr. Larry Wrabetz (Director, HJKRI)

HJKRI - Medical & Scientific Symposium

Annual Medical Symposium
Attendance to the scientific and medical symposium is by invitation only. For more information please email

Please Save the Date!

The Annual Medical & Science Symposium will take place Monday, July 17 - Wednesday, July 19, 2017 at Holiday Valley Resort in Ellicottville, NY.  

This annual multidisciplinary workshop brings together over 60 of the world's leading experts in Leukodystrophies and newborn screening to discuss advances in medical care and research for these devastating diseases.

Past programs and schedules (downloadable):

2016 Medical Symposium Agenda

2015 Medical Symposium Agenda

2014 Medical Symposium Agenda

2013 Medical Symposium Agenda

2012 Medical Symposium Agenda

The Family Symposium is scheduled for the week of July 19 - 23, 2017 at Holiday Valley Resort in Ellicottville, NY.

For information on the family component of the symposium, which welcomes over 50  Leukodystrophy families each year, please visit the Family & Medical Symposium page under our Family Programs.


Thank you to our Strategic Partners!

The 2016 Medical Symposium was made possible thanks to the generous support of Believing for Bryleigh and the Buffalo Bills Foundation.

 HH Logo and Type_Vertical_Grey Background

"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


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