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HH logo png 300x300 size "Light Your Heart
with Hope"
The Hunter's Hope logo is a candle flame in a heart. It represents the light of Christ in our hearts.
"For God, who said, 'Let light shine out of darknesss,' made His light shine in our hearts
to give us the light of the knowledge of the glory of God in the face of Christ." ~ 2 Corinthians 4:6
Hunter's Hope Foundation is a non-profit organization committed to giving hope through education and awareness,
research, and family care for Krabbe, Leukodystrophies, and Newborn Screening.

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Hunter James Kelly (2/14/97 - 8/5/05)

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Learn more about the Leukodystrophy Care Network


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      Hope and a Future - Read More...                                           Research

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You can Support the Symposium here

2016 Symposium - Galindo Family


Peace in the Face of Loss


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Love Endures

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Wall of Fame

With great honor we present to
you children affected by Leukodystrophy...



Find out what diseases your state screens for, how you can purchase supplemental newborn screening for Krabbe and similar diseases, and more...


Positive Screen?

If a child you know received a positive screen for Krabbe Disease, click here for more information...


Take Action for Newborn Screening  
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The Kelly Family Story
Learn more about our family and how God used our precious son Hunter, who never spoke a word, to change our lives forever...



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Learn more about Kelly Tough
Proceeds benefit Hunter's Hope


The Kelly Family's greatest passion is to bring encouragement and hope to families in the midst of suffering.
Learn more at the links below.

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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


About Us

Kelly Family Story
Hunter's Hope Team

HJKRI Clinical Center
HJKRI Basic Science Center
Extramaural Research
Medical & Science Symposium
Research Publications
Historical Research


Krabbe and Leukodystrophies

About Krabbe
About Leukodystrophies

Newborn Screening
What is NBS?
Krabbe NBS
State and Federal Info
Take Action
Families Taking Action
Supplemental NBS
Why NBS?


Family Care

Wall of Fame
Affected Family Registration
Hope for Life
Family & Medical Symposium
Hunter's Homes
Equipment & Supply Exchange
Ralph C. Wilson Jr. Wish Gift


Get Involved

The Kelly Tough
Every Score
Dine Out for Hope
Special Events & Campaigns
Hunter's Day of Hope & Prayer for Children
Strategic Partners




  6368 West Quaker Street, PO Box 643, Orchard Park, NY 14127 |  (716) 667-1200