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No state includes all potentially fatal, but treatable, diseases in its Newborn Screening Program. Currently, New York, Missouri, and Kentucky are the only states that screen newborns for Krabbe Disease.

With your help, we can save babies’
lives by ensuring that
Every Child. Every Time. Everywhere.™ is screened for every possible disease, including Krabbe, at birth.

Take Action to tell your state lawmakers why Expanded Newborn Screening should be a reality in all states.  Ask your friends, family - everyone you know to do the same. Be the voice for those who have none.

Take Action for Newborn Screening

Take Action!
Help us advocate for Expanded Newborn Screening in Every State.

Massachusetts - Support S1197 for Expanded Newborn Screening
Ask your state lawmakers to support legislation to increase the number of diseases that Massachusetts screens its babies for at birth to include Krabbe and similar disorders.
Maine - Support LD 265 for Expanded Newborn Screening
Ask your state lawmakers to support LD 265 to increase the number of diseases that Maine screens its babies for at birth to include Krabbe and similar disorders.
Pennsylvania - Support Hannah's Law
Ask Governor Wolf to ensure all PA children are screened for Krabbe at birth by implementing Hannah's Law.
Support Expanded Newborn Screening in Your State
Ask your state lawmakers to increase the number of diseases that your state screens for at birth.
New alerts will be added as opportunities for expanded newborn screening arise. If there's activity going on in your state, we'd like to help - please let us know by emailing

How Early Detection Saved Zoey and Michael's Lives

2014 Symposium_Michael Wilson and Zoey Moore
Michael and Zoey both received a tranplant for Krabbe Disease just after birth.  Their lives were saved because their older siblings were also affected by Krabbe Disease, giving them the chance for early detection and treatment that every child deserves.

By taking action in your state, you can help ensure that every child has the same chance at life as Zoey and Michael.

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"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to
give you hope and a future." 
Jeremiah 29:11 


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